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I have great respect for the community on GOG and wanted to share some really good news with you all. I hope nobody minds what I've got to say. What I should tell you to introduce the matter, is that I was 2 months short of having been a type 1 Diabetic for 47 years when I had my operation.

It's been 7 months since I was fortunate enough to receive from a donor a new pancreas and the top end of their bowel (apparently the body adjusts to 2 organs better than 1). This procedure has completely altered my life. No longer do I have to inject twice daily. No longer do I have to finger prick several times a day if I want to drive the car anywhere. No longer am I struggling to walk up a flight of stairs, getting breathless walking into the wind. No longer is my skin yellow or grey. No longer do I look constantly exhausted.

I feel incredible. I'm full of energy. Now if I'm tired it's because I've done stuff and been busy. I'm getting stronger as the weeks pass and my stamina is improving. Also, my immune system has now built up enough to cope with a cold without flooring me. I've had to get new glasses because my eye sight’s improved and feeling has returned to areas on my feet where I'd begun to lose sensation.

For quite some months I'd felt my body has been experiencing a level of reversal due to being donated a pancreas. Yesterday I got proof of that in the eye department of Lincoln hospital. After photographing and examining the backs of my eyes and their general condition, the consultant was clearly stunned. The improvement is remarkable and my eyes are healthy with no micro-vascular lesions. He thinks that after 1 more check-up, he'll be able to dismiss me from his clinic. He said I wasn't to expect anything from Father Christmas this year as I'd had all my Christmases at once.
My pancreas continues to function normally. I remain vulnerable and need to get through the first year safely before my immune system will be properly up to speed, but I'm doing well. It will also be at least a year before the wound and swelling heals fully, so I have some tenderness in this area. But this is such a small price to pay for getting my life back. I can't donate organs, but I can donate my body to medical science and this is in my will.

If anyone reading this has been, or is wondering about becoming an organ donor - do it. It's worth it, I'm living proof of the benefits organ donation brings. And I'm not alone; I saw the positive effects of organ donation both times I was in Manchester hospital. I don't know who my donor is, but I thank them and their family from the bottom of my heart.
Glad to hear you're doing so much better now! It's incredible how a transplantation like this can really change someone's life. I hope things will continue to go well for you and that you'll get safely through that first year.

I am a donor and have been since I was fifteen or so. The thought that some day my organs might be beneficial to other people is a good one.
Thanks for sharing your happy news.
And congrats for the shiny new Pancreas! :D
Attachments:
pancreas.jpg (85 Kb)
Post edited September 18, 2015 by phaolo
That's awesome. I was diagnosed with type 1 diabetes (or child diabetes, as it was called then) about 25 years ago, so I can understand the relief even if my health is still much better than yours seem to have been.
Congrats, although really you're proof of the effects of being a donor recipient and not of being an organ donor.
Congratulations! It's always cool to hear about people having major life improvements like this. After nearly 47 years, it must be absolutely incredible to have had this operation done.
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Polly77: I have great respect for the community on GOG and wanted to share some really good news with you all. I hope nobody minds what I've got to say. What I should tell you to introduce the matter, is that I was 2 months short of having been a type 1 Diabetic for 47 years when I had my operation.

It's been 7 months since I was fortunate enough to receive from a donor a new pancreas and the top end of their bowel (apparently the body adjusts to 2 organs better than 1). This procedure has completely altered my life. No longer do I have to inject twice daily. No longer do I have to finger prick several times a day if I want to drive the car anywhere. No longer am I struggling to walk up a flight of stairs, getting breathless walking into the wind. No longer is my skin yellow or grey. No longer do I look constantly exhausted.

I feel incredible. I'm full of energy. Now if I'm tired it's because I've done stuff and been busy. I'm getting stronger as the weeks pass and my stamina is improving. Also, my immune system has now built up enough to cope with a cold without flooring me. I've had to get new glasses because my eye sight’s improved and feeling has returned to areas on my feet where I'd begun to lose sensation.

For quite some months I'd felt my body has been experiencing a level of reversal due to being donated a pancreas. Yesterday I got proof of that in the eye department of Lincoln hospital. After photographing and examining the backs of my eyes and their general condition, the consultant was clearly stunned. The improvement is remarkable and my eyes are healthy with no micro-vascular lesions. He thinks that after 1 more check-up, he'll be able to dismiss me from his clinic. He said I wasn't to expect anything from Father Christmas this year as I'd had all my Christmases at once.
My pancreas continues to function normally. I remain vulnerable and need to get through the first year safely before my immune system will be properly up to speed, but I'm doing well. It will also be at least a year before the wound and swelling heals fully, so I have some tenderness in this area. But this is such a small price to pay for getting my life back. I can't donate organs, but I can donate my body to medical science and this is in my will.

If anyone reading this has been, or is wondering about becoming an organ donor - do it. It's worth it, I'm living proof of the benefits organ donation brings. And I'm not alone; I saw the positive effects of organ donation both times I was in Manchester hospital. I don't know who my donor is, but I thank them and their family from the bottom of my heart.
Congrats on the new life. I hope all continues to go great and you never have to go back to finger pricking or injecting again. I've been type 1 for about 15 years now. I've had my ups and downs and I still do, as well as the occasional depression when thinking about it, and seizures when it bottoms out on me. But I'm managing, haven't had any seizures from it in a long time, man talk about a wicked hang over feeling. Always trying to make adjustments. It's so hard though when your life is not on a set schedule. And it doesn't take much to throw you out of routine and send your sugar out of whack. 47 years though of managing diabetes, you certainly deserve a break. Enjoy it. =)
Congrats.
On getting new pancreas.
I think organ donation is the last good thing that we can do before we die.
I have registered my mother, my two uncle, my grandmother and my self for organ donation.
I donate blood since i was 16 and still doing it.
Even my blood group is O +ve. :)
Let's celebrate this with some relevant "Weird Al" Yankovic!
Good news indeed. Glad it's not "Good News™!" Happy for you.
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InfraSuperman: Let's celebrate this with some relevant "Weird Al" Yankovic!
You are a genius! :D
Congrats! =)

I've been an organ donor ever since I started driving at 16. So far as I'm concerned, if someone needs some of my guts after I join the Great Eternal Orgy in the Sky — why not? It's not like I'll have much use for them, being dead and all.
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InfraSuperman: Let's celebrate this with some relevant "Weird Al" Yankovic!
Oh that is just fab! I'm sitting here with a big grin on my face :D

Thank you all for your comments and good wishes. It was a major op and to feel so well just 7 months afterwards is fantastic. The consultant I am under, plus the Drs and nurses who took care of me in hospital, are amazing. Right now, a pancreas transplant as a treatment for type 1 Diabetes isn't really known about. My consultant wishes more information was out there.

I'd also like to thank all of you who are already organ donors. It's because of someone like you that I'm now this well.

Diabetes is incredibly insidious in how it damages your body. I was well for 40 years, then the damage made itself known. I went from being incredibly fit to being unable to walk up a flight of stairs in less than a year.

I realise I've been incredibly fortunate to have a transplant and feel very humbled by the entire experience.
Post edited September 18, 2015 by Polly77
Congrats. My dad has type 1 diabetes for 20 years now,so i can imagine how great it must feel. And that's the first i hear about pancreatic transplants, however they probably can't do it yet in Romania and it must cost a fortune abroad.
I am so happy to hear the surgery was a success and your body accepted the donor pancreas! Thank you for sharing your story and reminding people the importance of organ donation. And thank you for donating your body to science. :) Enjoy your new life!
Congratulations! I am a T1 too (far younger though), so I can understand you really well.